I’ll Always Be Me – the world’s first e-book that banks your voice is launched

A first-of-its-kind e-book that collects people’s voices as they read the story aloud was launched today for people living with motor neurone disease (MND).

I will always be meis written from the perspective of a person living with MND explaining to loved ones about the disease and their experience with the disease.

The short story, written by New York Times bestseller Jill Twiss, takes less than half an hour to read and is designed to be a shared experience for family and friends.

At the end of the story, the recording is downloaded and transformed into a digital voice by SpeakUnique which can then be used with communication devices when needed.

The MND Association will fund the participation of people with MND living in England, Wales and Northern Ireland, thanks to donations from Dell Technologies and Intel. This free service also extends to people living with MND in Scotland, with funding provided by MND Scotland.

Michael, who lives with MND, was able to test the book at home before the launch:

“When I was diagnosed with MND, I decided I could sit back and feel sorry for myself, or do something positive to help others. Being involved in I Will Always Be Me was absolutely brilliant – my family was there to support me and we all had a fun day. I hope this project will lead to a much better understanding and awareness of MND, not just for families and friends, but also for the general public.

I Will Always Be Me is dedicated to the memory of Brian Moss, who died of MND in 2014. His son Stuart, Head of IT Innovation at Rolls Royce, was compelled to help improve the lives of others affected by MND and so, with the MND association, created the NextGen Think Tank in 2019.

Dell Technologies and Intel were the first to join this effort, and other organizations soon followed. Over the past year, these companies have come together to develop I Will Always Be Me to provide an alternative voice banking option.

Nick Goldup, Director of Care Improvement at the MND Association, said:

“Voice banking is hugely important for someone diagnosed with MND, but traditionally it can be extremely time-consuming, laborious and often a very lonely process for the person involved. We wanted to change that – and so we’re incredibly proud that I Will Always Be Me is a completely different experience. People with MND have been at the heart of this project from the start, so it was important for us to develop something that was easy to use, engaging and had the potential to become a sustainable and valuable resource. I Will Always Be Me is a shining example of how bringing together the Think Tank’s expertise and resources can improve the quality of life for people with MND and we look forward to finding other ways to make a real difference.

Visit the I Will Always Be Me website

Learn more about voice banking


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